Let’s Race for Casen!

Race for CasenYou see, Casen was born with an extremely rare congenital vascular malformation called GVM Plaque Type. He is one of only 14 people in the world suffering from this condition – of which there are only two that present the same double hit deletion of the Glomulin Gene. Casen’s is very rare as i t covers his thoracic area, belly, arms, upper shoulders/back, and right thumb. It is unfortunately very extensive and very dangerous. The treatment he needs includes multiple surgeries and constant care – most of which will require travel and possible relocation to Belgium so that he can be seen the one and only doctor capable of treating his condition. On top of all of that, insurance doesn’t cover Casen’s treatment because of its classification as “experimental”. This is why we need your help. And we have a great way that the community can lend a hand and benefit the family directly by taking part in a special event. In an effort to raise money for Casen’s continued care, we have scheduled a 5K race to take place on June 15, 2013 in Edgewood, WA. The Race for Casen is being organized to benefit the family and 100% of the proceeds will go directly to the Buswell family. But we need help from donors, sponsors, and community organizations to make this a success. I’ve attached a sponsorship listing that includes what we as a fundraising race still need – as well as how we can pay it forward to all of our donors through advertising, shout-outs, and media mentions. Thank you so much for taking the time to read this letter and share our story with others in the community. By coming together in this way, we can give Casen’s family hope. And that is a priceless gift.
Click here for Sponsorship Tiers and full letter

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s